Clik here to view.
Wee fat boy aka my buddy and his tum (5)
Eli is a fat boy, in spirit. I’m a wee fat boy in my spirit animal In reality, his BMI is a about the 5th percentile. I do not like percentile talk. I’ve always viewed it as some kind of twisted mom...
View ArticleClik here to view.
Nanny state
We’re on the hunt for a nanny once more. I’m sad to lose current, amazing nanny Stephanie. However, she’s a woman with goals, and that’s a good thing. Nanny S took a job in the realty field, which she...
View ArticleClik here to view.
Breakfast at Eli’s
My 1-year-old needs 200 percent more calories than the average tot. Here’s what breakfast looks like: Eli wakes up Hangry. That’s hungry-angry. His body doesn’t absorb fat right, because he has cystic...
View ArticleClik here to view.
Let’s get physio, physio! Then let’s get Waffle House, Waffle House!
My week of writing about Eli and different games and therapies – physio! – to keep his lungs healthy has come to a close. While I didn’t get to write as many posts on this topic as I would have liked,...
View ArticleClik here to view.
Eli would like you to know how he feels in 4 scenes
He’s raging against the machine today. This is how we feel about our vest this morning #cysticfibrois https://t.co/aHs4mns18H — thisiseli (@hithisiseli) July 27, 2014 And this…#cf #cysticfibrois...
View ArticleClik here to view.
7 ways to knock out back-to-school shopping for $150 or less a kid. Supplies,...
Last week I gave Laila a back-to-school budget of $150 and vowed not to exceed it. That’s harder than it sounds. Shiny, pretty back-to-school things are everywhere. A few increments of $20 or $30 and...
View ArticleClik here to view.
In pictures: A little boy’s experience at the cystic fibrosis clinic
Today marked Eli’s appointment at the cystic fibrosis clinic. He sees his pulmonologist every three months. Eli has developed strong opinions on just about everything. He says just a few words these...
View ArticleClik here to view.
Coach Mommy’s on the case
The news at Eli’s latest CF clinic appointment that studies have shown Eli’s lung function will likely start to differentiate from that of his non-cystic fibrosis friends at 2 got me kinda down, then...
View ArticleClik here to view.
Shaking off a cough
Eli started up with a little cough again pretty much the second he got off of his antibiotic from the last go-round. That means he’s spending 1.5 hours a day on his shaking vest and tends to be none...
View ArticleClik here to view.
0 to crud in 60 seconds
I put a note on my Facebook page for Eli that buddy improved and was no longer coughing. Shouldn’t have done that. The very next day, he went from 0 to crud. Overnight, he started hacking. Zero cough...
View ArticleClik here to view.
Bruiser and me
Thirty pounds of rage can flip chairs, shatter sound sound barriers and thrash at your heart, one so full of love for this little bruiser. Seems at nearly 3 Eli has decided he has a lot to say about...
View ArticleClik here to view.
Problems, problems, how you gonna solve ’em?
Sometimes you just gotta write through the fog of despair to find clarity. That’s what I did Saturday, starting at 5:30 a.m., before my kids were up, so I could let go of a crummy week and have a fun...
View ArticleClik here to view.
Bedtime books: 3 of Eli’s picks
Bedtime takes up so much of our lives, I don’t know why I haven’t written about it before. Most likely it’s because I collapse into a heap afterward. Below are the three books 3-year-old Eli picked out...
View Article
